Wednesday, November 28, 2012

Just some photos...

Happy Wednesday!

Thursday, November 22, 2012

Happy Thanksgiving!

We are thankful for...

...cups, jobs, our cars, food, toys, ice cream, my wife, heat, Ethan, my tools, plates, ketchup, electricity, clean water, books, the Bible, our house, doctors, my mom and dad, Daddy, Ms. Theresa, my church, shirts, coffee, and friends... name a few.

Happy Thanksgiving to you and yours!

Wednesday, November 21, 2012

Photo Book Winner!

Thank y'all for the sweet comments about your favorite blog posts.  I'm not gonna lie - I was moved to tears by most of them, and each of them brought a smile to my face! This boy of mine has come so stinkin' far and I appreciate you remembering and celebrating with me.

So, onto the winner...

Comment #3, by Haleigh and Noah's Mom:  
I have been reading this blog for years and I can't pick just one memorable story.  Ethan's story has been such a huge testimony of how wonderful our Savior is.  Love reading the updates and yall are always in my prayers!


Thank you, Kristen, and congratulations! Send me an e-mail at joyemullis{at}gmail{dot}com and I'll send you the promo codes for your free book!

Y'all have a great day!

Tuesday, November 20, 2012

The Feast

Last week, Ethan took part in his first ever holiday "program" - an adorable Thanksgiving feast put on by the three-year-old classes at his preschool.

He had spent the couple of weeks leading up to Thursday's event singing the songs and explaining to Jeramie and me how to bow after a performance.  Precious, I tell ya! Of course, on the day of, not a word escaped his little lips.  He went from excited about seeing us in the crowd, to shy, to even covering his face during part of one of the songs.  He was so proud just to be up there with his new buddies, though, and so were we!

Love that face!

Future outfielder?

Running to Mama after the performance

Ethan was especially excited that Jeramie was able to come, and I am so thankful for their sweet relationship.  These faces say it all...

In other feast news, we learned how to cook a turkey, according to Ethan... 

"My mommy puts the turkey in the oven for five hours.  Then she takes it out and puts salt on it."

Not bad, considering I can barely cook chicken tenders - let alone turkey.  He must be learning from those grandmas of his!

We hope y'all are having a great week and gearing up for a wonderful Thanksgiving!

So proud of our boy!

Wednesday, November 14, 2012

A Video Thank-You and a Giveaway!

*E-mail subscribers and Google Reader users - you may need to click through to the blog to view the video!

So, reminisce with me.  What has been your most memorable Signs of Life moment over the past four years and five-hundred posts?

One lucky commenter will win a free 8x8, 20-page, hardcover photo book from Shutterfly, with free shipping, to document your own favorite photos and memories!

Thanks again for loving us well, and good luck!

(Comments will close at 11:59 p.m. EST on Tuesday, November 20, 2012.  One entry per person.  One winner will be picked, using, and announced on the blog on Wednesday, November 21st. Promo codes for one free photo book and free shipping expire on December 9th, 2012.  Taxes may apply.)

Tuesday, November 13, 2012

Our Thankful Tree

So, I've been reeeeally slack about my one thousand gifts project.  I can think of multiple things on a daily basis that I'm thankful for, but - one - to have the camera ready, and - two - for it to be something I can actually take a photo of, is proving to be difficult.  I think I'll make one last collage with four photos to make an even one-hundred, then simply write the rest.  We'll see.

The whole point of starting the project, though, was to pull myself into a deeper level of gratitude.  Saying "thank you" has always been important in our family, but I want to move past the obligatory "thanks for passing the popcorn" and into a constant state of thanksgiving.  I think I'm getting there, and I'm seeing genuine appreciation begin to emerge from Ethan as well.  It's pretty awesome, and I thank God for it!

So, between it being the month of thanks, and reading everyone's blog posts and Facebook updates about what they're thankful for, I had an idea.  Not an original idea, I'm sure, but an idea nonetheless.  For about an hour this afternoon, Ethan and I cut-out construction paper pieces for our family's thankful tree.  The idea is that every night at dinner, leading up to Thanksgiving, the three of us will say one thing we're thankful for.  I'll write each answer on a leaf, and we'll watch our tree of thanks grow!

It's incredibly simple, and it has made me smile multiple times today already.  I'll post a photo of the finished product and let y'all decide who said what, and who cut-out which pieces!

Sunday, November 11, 2012

Shutterfly: Thank the Troops

I don't know about y'all, but when it comes to holidays, I can focus more on the time Jeramie gets off of work than the holiday itself.

This flaw of mine came up just last night at dinner when I asked him, for the umpteenth time, "Are you sure you don't have Monday off of work?!"

He doesn't, but that doesn't mean today isn't worthy to be celebrated.  I won't claim to know the sacrifice military families have to make on a day-to-day basis.  I've never known this first-hand, but I've witnessed it in a handful of other families.

These men and women deserve extraordinary amounts of thanks, and the folks over at Shutterfly are giving us an opportunity to give them just that.

With a few clicks of your mouse, you can choose, personalize, and send a thank-you card to a troop - Shutterfly will print and mail it, at no cost to you.  I just did it myself and it took less than two minutes! It's a simple act of gratitude that will speak volumes to our troops.

I hope you'll take a couple minutes out of your day to participate: Thank the Troops

Happy Veteran's Day!

Saturday, November 10, 2012

The Ethan Update

Aside from our vacation, we've had a lot going on in the past month or so! How 'bout an update on this mischievous little boy...

Yeah ... and?

For starters, our first nephew (and Ethan's first cousin) - Johnny - was born on October 1st.  We are smitten with him and, personally, I'm really excited about being an aunt for the first time!

Ethan has big plans in store for the two of them, and it melts my heart to hear him talk about Johnny in such an adoring way.

Also, in the vein of "big family news", my sister is engaged! I am beyond thrilled for the two of them and I'm still digesting the fact that my "little" sister is getting married.  Welcome to the family, Uncle Moo! (For the record, this has been twelve years in the making.  Morgan is my best friend's brother, so Brandi and I are officially sisters.  Or something like that.)

Now, before I go any further, let me say this.  Sometimes I struggle with recognizing the difference between pride and bragging, and celebrating how far Ethan has come.  I'm learning that when I think it's all about me and what a great mom I am, that's a problem.  (Because, let's be honest - even on a good day, I still raise my voice and lose my patience!) But when I sit back and marvel at how present God has been in the life of my son, and give Him the glory for that, it makes me want to throw a big 'ol party.

So, with that said, let's celebrate!

Preschool is going exceptionally well for Ethan now that he understands what's expected of him.  There was a rough adjustment period in the beginning, but all of that is now a thing of the past.  When I pick him up each afternoon and hear about the types of things he said and did throughout the day, it gives me hope that some of what Jeramie and I are trying to teach him is actually sticking.  Some days, y'all, I'm not so sure.  Needless to say, preschool has been a huge confidence booster for him and me!

Along those same lines, he is doing great from a developmental standpoint.  We've had no reason to think that he is in need of any services at this time, and he actually received an evaluation at preschool that noted his speech and language skills are within normal limits for his age.  Praise God!

A mama and her boy

Ethan's left hand has been the topic of conversation lately, as we had a one-year follow-up with his orthopedic surgeon a couple of weeks ago.  The x-ray looks unchanged, except for a slight inward turn.  We're not sure if that is due to a change in the actual anatomy of his arm, or if it's simply a matter of x-ray positioning.  Dr. F. didn't seem too concerned about it and doesn't feel the need to see him for another year.  There's still no need to brace Ethan's arm, which I am more than fine with, but it may be needed further down the road.  Based on what we learned two weeks ago, we still have a long way to go before we need to make any more decisions about future surgeries or interventions - if any at all.

The same day of the orthopedic follow-up, we met with a genetic counselor.  Given that various genes in Ethan's body have been tested, with no genetic diagnosis, we have enrolled him in a study at Duke.  Through this study, Ethan's entire exome will be sequenced to determine if any genetic diagnosis can be made from what they find. While this is more for their research purposes, there is a chance that we may learn exactly what has caused his various birth defects.  The earliest we could hear something would be April of next year, and if nothing is found we'll hear nothing.

I'd be lying if I said I'm not a little anxious to see what will come of this.  There's a very small chance that something they find would change Ethan's course of treatment, but a diagnosis would go a long way towards answering questions about additional children we may have, and even Ethan's future children.  Pray for us, please!

We've also been having some family fun this fall! Three years ago I felt completely isolated and thought we'd never be able to show Ethan the light of day.  If you would have told me then that he'd be in preschool now, and would become such a social kid after a year of very little social interaction, I wouldn't have believed you.  And, I really would have laughed if you told me he would do all those things without catching every single germ that came his way!

Truth is, Ethan thrives on social interaction and he's the healthiest I've ever seen him.  And you know what? My worrying didn't get him to this point.  That's all God - and He is so good.

Fall fun highlights...

Sometimes you just have to go outside and dance in the rain.

Carving a pumpkin with Daddy.  I love the concentrated looks on their faces!

Getting ready to trick-or-treat with Emma and Jackson, aka Hermione and Super Why

Birthday party fun

Rubbin' is racin'!

And just because it's precious...

Y'all have a great weekend!

Tuesday, November 6, 2012

Disney in Review - The Magic

If this hasn't been clearly stated in the other posts, let me say it now...

Disney is freakin' magical.

I don't care if you're three, or thirty, that place is simply amazing.  The only other time I've been there paled in comparison to this trip. Yes, our senior trip was fun and exciting, and we got to watch Destiny's Child perform in front of the castle, and it holds fond memories of sweet Michael - but, man.

To see it through Ethan's eyes - and to experience it for myself in such a different way - was incredible! There were things, from an excellence standpoint, that thirty-year old me could appreciate far more than eighteen-year old me.

Like this, for instance...

I mean, really.  Who takes such pride in their work that they go above and beyond just cleaning the messy spill off the concrete?!

Then, there were things that I think I could only see through Ethan's eyes.  Standing in front of a gigantic aquarium and watching the manatees swim?

Not sure I would have done that if it wasn't for my animal-loving three-year old - or Christy, actually!

A few other favorite magical moments from the trip:

1.  Standing at the bottom of the castle, just before the fireworks began.

2.  Watching "The Festival of the Lion King" with Ethan, and being just as enthralled as he was.

3.  Ethan snuggling Nemo with his own "special fin" during "Finding Nemo: The Musical".

4.  The smile that I captured right after Ethan met Mickey for the first time, and that I continued to see throughout the week.

5.  And this?

Top magical moment, by far.  I promised you the story back in one of my earlier posts, and I aim to deliver - and remember!

It was our second day at Disney and we were in Hollywood Studios.  We had just finished riding Toy Story Mania for the first time and the seven of us congregated in a spot just outside the ride.  Emma, being the avid pin trader that she is, spotted a Disney cast member with a large assortment of pins on his lanyard.  She walked over to him to make a trade and we all followed.

Jeramie and Jonathan had started a pin collection for Ethan the day before so we asked Ethan if he, too, wanted to make a trade.  He did, and the cast member bent down in front of the stroller to show him the goods.  What happened from there, I'm not exactly sure.

This is what I know.

As the cast member was talking to Ethan about pins, we noticed that we just happened to be standing in front of the meeting spot for Buzz and Woody.  Ethan quickly noticed this, as well, and Christy went to check on the wait-time.  When she came back, we briefly concluded that we wouldn't have time to wait due to our lunch reservations.

During all of this, I was standing with Ethan and the cast member, halfway in the Buzz and Woody conversation, halfway helping Ethan make a trade.  The cast member was seemingly oblivious to the adult conversation happening above him and had moved onto noticing Ethan's "1st Visit" button ... and maybe his hand, and maybe his "stroller = wheelchair" sticker? ... He made a huge deal about it being Ethan's first trip, started to talk to him about what he had seen so far, and then asked if he'd like to meet Buzz and Woody.

Of course, Ethan excitedly yelled, "YES!" and I'm thinking to myself - "of course he does, but we just determined the line is too long..."

The cast member stood up, smiled and winked at me, then held up a finger as to suggest "give me a minute".  He stepped inside the meeting room - he was, after all, the cast member assigned to the exit - and came out a few seconds later.

"Give me two minutes," he said with a smile.

Before I could wrap my mind around what he had just done, our entire party of seven was being personally escorted into the meeting room by this man, and Ethan was staring up at Buzz and Woody with wonder and awe in his eyes.

I held it together for the photo, then ugly-cried my way out of the room.

Some of the tears were out of pure joy for Ethan, and the others came from a place of deep appreciation for what this man had done.  For noticing the details.  For making a memory that will last our family a lifetime.

As we were walking out of the room, he held the door open for us and grinned.  Through my tears, I asked if I could give him a hug.  He allowed me to do so and, as I pulled away, he kept a hand on my shoulder and said,

"It's all a part of the magic."


You can read all posts related to our trip here.
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